Understanding Autism

Five-year-old Eli is quiet and serious. Bright lights and loud noises can overwhelm him, but he loves color and expresses himself through vivid drawings. He tends to play on his own, focusing intently on the intricate patterns he creates with his toy blocks.

At eight, Leah is non-verbal but has a strong sense of her surroundings. Using an assistive communication device, she selects images to convey her feelings and needs. She thrives on routines, finding comfort in predictability, and often rocks back and forth when trying to soothe herself.

Ten-year-old Shmueli finds comfort in routines. Transitions, especially unexpected ones, are unsettling for him. He asks lots of questions, seeking clarity and stability. He thrives on clear expectations and needs gentle reassurance throughout the day. He rarely initiates conversations but listens intently, often repeating phrases or sounds he finds intriguing. 

All three of these children have autism spectrum disorder (ASD, or autism in short). 

What exactly is autism?

Autism is a complex neurological disorder. At its core, autism is a neurodevelopmental disability shaped by various brain differences, and it impacts how the brain processes information, interprets experiences, and engages with the world.

According to the Centers for Disease Control, ASD affects approximately 1 in 36 children in the United States today. It’s four times as common among boys as girls. 

Understanding the types and levels of autism

ASD has been termed a spectrum disorder because there’s a vast range of experiences and abilities among individuals with autism. There are different types of autism, including Asperger’s syndrome, pervasive developmental disorder-not otherwise specified (PDD-NOS), and classic autistic disorder. Each type presents unique challenges and strengths.

Additionally, autism is often categorized into different levels of autism severity, based on how much support an individual requires. Level 1 (requiring support), Level 2 (requiring substantial support), and Level 3 (requiring very substantial support) reflect the range of experiences and abilities among individuals with autism.

Some individuals face challenges primarily in social interactions, while others may have heightened sensitivities to sensory stimuli. Conversely, many show remarkable talents in areas like art, music, mathematics, or memory.

The biological basis of autism

These varying talents and challenges can often align with specific types of autism or different levels of autism. Every individual with autism experiences the world uniquely, and behind each of these experiences lies a rich tapestry of thoughts, feelings, and potential.

The neurological underpinnings of autism are multifaceted. Variances in brain structure and function contribute to the unique challenges and strengths of those with ASD. Imagine the brain as a complex highway system; in autism, the “routes” for social cues, sensory input, and other skills might be mapped differently.

These alternative pathways can lead to sensory sensitivities and often coexist with medical or mental health conditions like gastrointestinal disorders, seizures, or anxiety, which can vary based on the different levels of autism severity.

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Identifying the first signs of autism

Signs of ASD can manifest early on in a child’s life. While signs of autism in newborns aren’t pronounced, they become more apparent at 24 months or later. 

Early diagnosis offers the benefit of timely intervention, increasing the potential for a positive long-term impact. However, it’s essential to note that even if a diagnosis was made later, there’s still great potential for growth and progress. 

Keeping an eye on a child’s developmental progress is essential. Signs of autism in newborns to look out for during the first year of life include things like limited eye contact, not responding to their names, or a lack of bodily communication like pointing or waving by 12 months. These symptoms can indicate various types of autism.

As they grow into toddlers, between the ages of 1 and 3, you might notice more pronounced symptoms such as delayed speech, repetitive behaviors, or inconsistent reactions to sensory stimuli.

When children reach preschool age, from 3 to 5 years, their social interactions offer more cues. They may show difficulty in understanding how to play with toys appropriately, exhibit distress at even minor changes in routine, and may struggle with understanding and expressing emotions. 

However, you should understand that occasional signs don’t confirm autism; it’s their persistence and intensity that matter. Consult a health care professional for an evaluation and possible early interventions if you’re concerned.

Diagnosis: How screening works

Identifying autism is a multi-step process that integrates observations, screenings, and comprehensive assessments. 

Pediatricians often serve as the first line of identification through routine well-child checkups, at which they monitor growth, behavior, and learning. These regular visits can help detect potential developmental delays and serve as a foundation for further evaluation.

Additionally, a specific screening tool, the Modified Checklist for Autism in Toddlers (M-CHAT), is used for children aged 16-30 months to help parents and professionals identify early signs of autism.  If preliminary screenings raise flags, the next step involves a more comprehensive diagnostic evaluation by a team of specialists. 

Comprehensive diagnostic evaluation

These evaluations help identify the specific types of autism and determine the appropriate levels of autism severity, informing targeted intervention and support plans. 

Specialists involved typically include developmental pediatricians (who specialize in child development and behavior), child neurologists (who rule out other neurological disorders), child psychologists or psychiatrists (who conduct detailed behavioral assessments), and speech and language pathologists focusing on common speech and language challenges.

The guidelines for diagnosing autism come from the DSM-5 (Diagnostic and Statistical Manual of Mental Disorders). There isn’t a specific medical test to diagnose autism, but a combination of structured observations and tests covering social interactions, communication skills, and behavior to assess whether an individual meets these criteria. 

Additional specialists may be included in the diagnostic process, and some cases, genetic testing may be recommended to identify conditions like Rett syndrome or Fragile X syndrome.

The results of these formal evaluations are crucial for determining whether an individual meets the criteria for an autism spectrum disorder, which now encompasses types of autism previously diagnosed separately, like autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), and Asperger syndrome.

What help is available? 

Navigating the realm of autism treatments and medication options can be overwhelming. With the vast array of choices available, it’s important to ensure that interventions are an appropriate fit with the person’s unique needs. These are some of the interventions that you might find helpful in assisting your child with autism.

1. Behavioral and communication therapies

Behavioral and communication therapies play a significant role in supporting individuals with autism across various types of autism and levels of autism. These therapies aim to address specific challenges in behavior, communication, and everyday skills.

Applied Behavior Analysis (ABA)

Applied Behavior Analysis (ABA) is a widely recognized therapy used to address challenges related to autism. ABA involves understanding behaviors and modifying them through positive reinforcement. It helps individuals across all levels of autism to improve a range of skills and reduce undesired behaviors.

Speech Therapy

Speech therapy directly addresses common communication difficulties found across different types of autism. It supports individuals in enhancing their verbal, non-verbal, and social communication skills, helping them better express themselves and interact with others.

Occupational Therapy

Occupational therapy is customized to support individuals in overcoming daily life challenges. It particularly benefits people with varying levels of autism by targeting essential areas such as daily living skills, motor coordination, and sensory processing.

Educational Therapies

Children with autism greatly benefit from personalized educational programs and specialized teaching strategies designed according to their unique types of autism severity.

• Individualized education plans (IEPs): Customized learning plans designed specifically for the student's unique educational and developmental needs.
• Structured teaching and autism visual supports: Utilizing visual aids, this approach helps organize the learning environment to match an individual's learning style, benefiting learners across various autism profiles.

These educational therapies can greatly enhance academic and social success for individuals with autism.

2. Family therapies and support

Family involvement is critical in autism support. Family therapies and autism support groups empower family members by providing strategies and emotional support, beneficial across all types of autism.

• Equip families with practical strategies to better understand and support their loved ones.
• Provide counseling services to address the emotional and physical challenges faced by families.

Family therapies foster stronger bonds and create more supportive home environments, vital for individuals with autism.

3. Medication options

While no medication can cure autism, certain drugs can manage symptoms associated with specific types of autism. Medication should always be considered alongside behavioral and educational interventions.

• Attention challenges: Medication like Methylphenidate can improve focus in some individuals.
• Anxiety and depression: Selective serotonin reuptake inhibitors (SSRIs) can be helpful.
• Behavioral issues: Risperidone or Aripiprazole can manage irritability and aggression.
• Sleep disturbances: Melatonin supplements or prescribed sleep aids may support better rest.

Medications can significantly enhance the quality of life but require careful monitoring by healthcare professionals.

4. Alternative and complementary therapies

Many families explore alternative treatments and therapies to supplement traditional autism interventions. These methods often support specific sensory needs and emotional expression, varying with different types of autism.

• Sensory-based therapies: Utilizing sensory integration tools like swings or trampolines.
• Dietary approaches: Gluten-free or casein-free diets may offer benefits, although scientific evidence varies.
• Music or art therapy: Creative activities can provide emotional relief, therapeutic benefits, and a valuable outlet for self-expression.

Alternative therapies offer additional avenues of support and enrichment tailored to individual needs.

Ultimately, autism treatment and management require a highly individualized approach. Collaborating closely with healthcare and therapy professionals, understanding the individual's specific types of autism and associated levels of autism, and building a robust support system provide the strongest foundation for success and well-being.

There's Support For You

If you’re a parent on this journey, know that our understanding of autism is ever-evolving, and staying informed is so important. Support is available, both professional guidance and from autism parent support groups - communities of parents and caregivers who are walking the same path as you. Seeking and accepting this support will make all the difference.

Contact Hamaspik today and discover how our specialized resources, expert guidance, and compassionate care can help your family thrive.

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