Special Needs

The Yom Tov Parenting Survival Guide

Ten tips for managing Yom Tov with a child who has special needs.

By Bassi Gruen LSW

You may have heard the famous saying, "If you fail to plan, you plan to fail." This is especially true when preparing for long stretches of Yom Tov with children who struggle even under the best circumstances. To set yourself up for success, here are ten of our favorite tips:

Prioritize Calm Over Perfection "Lower your expectations, then lower them again! Getting enough sleep before Yom Tov and approaching it calmly should be your priority. Make one less dessert, buy takeout, accept help — do whatever it takes so you start Yom Tov in a good frame of mind.”
— Fellow mother M.G. 

Manage Sensory Sensitivities in Shul “For children with sensory issues, cramped spaces like shuls during shofar blowing may be overwhelming. Consider standing outside by the window so you can hear the shofar without feeling closed in, or attending a later shofar-blowing when the shul is less crowded. Plan a trip to the park or another pleasant activity after shofar-blowing as a reward to make the experience more enjoyable for your child.”
—Chava Laufer, Five Towns OPWDD-HCBS Regional Manager

Maintain Routine “Try to keep your usual routine as much as possible. Go out a little and feed the kids at regular times, even if the seudos are at erratic hours.”
— Surie Morgenstern, Pillar Supervisor

Spice Things Up “Buy new toys — they can be inexpensive ones from the dollar store —to add variety and excitement to the long days. Buy treats for yourself too, whether it’s a new book, a favorite snack, or something else you’d enjoy."
— Fellow mother M.G.

Schedule Playdates “Scheduled playdates can help break up the day and provide both fun and structure for children during the long days of Yom Tov.”
 —Chava Laufer, Five Towns OPWDD-HCBS Regional Manager

Don’t Go It Alone “Accept help! There are so many wonderful girls out there looking to volunteer.”
— Fellow mother R.S.

Make Unfamiliar Spaces Comfortable “If you’re going away, bring familiar items like favorite toys, security blankets, and even preferred foods like yogurts and crackers. Keep toys and books in your room so your child can retreat there for a break or reset if necessary.
“Prepare the kids for what will happen: ‘We’re going to Bubby’s, and Aunt Chaya will be there with Yossi, Chaya, and Moishe. You’ll sleep in my room, and we’ll bring some toys, and Bubby has toys to share. Bubby likes it when you… Bubby doesn’t like when…’
“Try to find a sibling you can confide in for support and who can help your child interact with their cousins at whatever level they can.”
— Fellow Mother M.G.

Plan Respite Time Well Some families find scheduling respite care in the late afternoon gives the whole family a break when they need it most. Consider this option if it works for you.
 —Chava Laufer, Five Towns OPWDD-HCBS Regional Manager

Ready to Charge “I fully charge the feeding tube pump before Yom Tov. Then I leave the charger plugged into an accessible place near the crib so if the battery doesn’t last three full days, I can charge it with the least melachah possible.”
— Surie Morgenstern, Pillar Supervisor

Let Food Be Fuel "It’s tempting to try to buy quiet with treats, but sugar will often dysregulate children. Limit junk food, particularly later in the day, and stock up on healthier snacks."
—Chava Laufer, Five Towns OPWDD-HCBS Regional Manager

With these tips, a good sense of humor, and lots of patience, you'll hopefully not only get through these days but also enjoy (parts) of them as well!

Auditory Sensitivity

My child is sensitive to loud noises
(e.g., sirens, vacuum cleaner).

My child seeks out specific sounds or types of music and appears calmer when listening to them.

Tactile Sensitivity

My child is irritated by certain fabrics or tags in clothing.

My child seems indifferent to sensations that are usually painful or to extreme temperatures.

Visual Sensitivity

My child is sensitive to bright or flashing lights.

My child tends to avoid eye contact.

Taste/Smell Sensitivity

My child constantly prefers bland foods and rejects foods with strong flavors or spices.

My child seeks out strong or unusual smells, such as sniffing food or objects.

Proprioceptive Sensitivity

My child prefers tight hugs or being wrapped in a blanket.

My child is unaware of body position in space (e.g., often bumps into things).

Social Sensitivity

My child becomes anxious or distressed in crowded spaces.

My child is hesitant or resistant to climbing or balancing activities (e.g., jungle gyms, see-saws).

Movement Sensitivity

My child dislikes fast or spinning movements

Vestibular Sensitivity

My child becomes anxious or distressed in crowded spaces.

My child is hesitant or resistant to climbing or balancing activities (e.g., jungle gyms, see-saws).

Please answer all questions before submitting.

Your Child’s Score is

  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

0-15: Low Sensory Sensitivity

  • Interpretation: Your child exhibits low levels of sensory sensitivity, usually falling within the typical developmental range.
  • Recommendation: Generally not  a cause for concern. If you have specific worries or notice a sudden change in behavior, consult a healthcare professional for a comprehensive evaluation.
  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

16-30: Moderate Sensory Sensitivity

  • Interpretation: Your child displays moderate sensory sensitivity, which may warrant intervention.
  • Recommendation: Consider sensory-friendly activities, sensory sensitive toys, or sensory sensitive clothing like noise-canceling headphones and weighted blankets to improve comfort. If symptoms persist, consult health care professionals.
  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

31-45: High Sensory Sensitivity

  • Interpretation: Your child has higher than average sensory sensitivity that may interfere with daily functioning.
  • Recommendation: Seek a detailed evaluation by health care professionals for sensory integration therapy options and potential environmental modifications.
  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

46-60: Very High Sensory Sensitivity

  • Interpretation: Your child demonstrates high levels of sensory sensitivity that could significantly interfere with daily life.
  • Recommendation: If your child displays this level of sensory sensitivity, it’s highly recommended that you consult with a health care professional for a multi-disciplinary assessment. You will probably be directed towards early intervention programs and specialized support.

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